- 43 Posts
- 328 Comments
What’s the artist’s name? Would love to find more disability-centric art
Going temporarily mute can be a really weird experience, and is something I imagine is very personal to the individual. When it happens to me, I usually end up wanting to be wrapped up in a blanket or thick hoodie in the dark in a soft, quiet place like my bed. Sometimes I’ll stim with a toy or something, and sometimes I’ll just kind of dissociate until I have the energy to speak again. If you haven’t already heard of it, Stim Punks Foundation has some amazing content: (this links to their situational mutism page). Here’s a great graphic from them that might help too. It’s cut off but the full thing is on that page I linked and includes sources with further reading.
getoffthedrugsdude@lemmy.mlto Autism@lemmy.world•Do all of us neurodiverse folks have sleep issues?2·17 days agoYep, allllll the time. I can’t sleep without white noise because I’ll fixate on things like cars passing or the a/c kicking on. I swear I can feel every hair on my head some nights and they’re somehow twisted the wrong direction. I have sensitive skin too, so I’ll randomly get hives/red itchy splotches that are maddening when trying to sleep. If I get actual bug bites I have to put bandaids over them so I don’t feel them rubbing against any fabric because I’ll scratch them bloody even when unconscious. Fun times.
getoffthedrugsdude@lemmy.mlto Autism@lemmy.world•Do all of us neurodiverse folks have sleep issues?4·19 days agoI’ve had insomnia my entire life. Can’t sleep more than 4-5 hours at a time because of horrible/strange dreams/nightmares. Falling asleep is the worst of it, and the tiniest of disturbances (a noise, sensory issue like with the bedding) can dysregulate me to the point of distress making it hard to relax and pass out. I only slept well during times of heavy thc use, but those days are long gone. I need white noise, total darkness, and clean bedding to fall asleep these days and it’s never a guarantee.
Only when I start screaming or crying from nightmares…
getoffthedrugsdude@lemmy.mlto News@lemmy.world•Residential treatment school closes in North Carolina after deaths of 2 girls6·1 month agoThe owner of Asheville Academy had a nature-based residential therapy program for boys closed by North Carolina officials last year. The license for Trails Carolina in Transylvania County was revoked after a 12-year-old boy was found dead in a cabin in February 2024, the day after he arrived.
getoffthedrugsdude@lemmy.mltoneurodiverse@hexbear.net•What are your coping skills for self harm/angry outbursts?English3·1 month agoI get this a lot, too. I’ve been known to say “fuck” really loud at whatever set me off, and sometimes I have to take some aggression out on my pillow or slam my fists into the mattress if I’m really distressed. If it’s a person or someone is around to witness it I just apologize and say I’m angry/frustrated but not with them and that I need a minute to regulate/ step away, then I kinda dissociate while my emotions untangle themselves. Sometimes that ends up as empty crying in a dark room, or laying down on the floor actively breathing for a few minutes. Then I somehow get up and keep going about things on autopilot… I think life obligations act like bumper rails that push me along even when I think I can’t go on. Pet needs to be cared for, food needs to be made, something will always need my attention, so I guess I switch gears to move away from the Thing until I can deal with it again. Giving yourself just a few moments to feel everything might make a difference. Idk if any of this is helpful, but you’re not alone in the struggle and I’m sorry things are so difficult. If you’re able, just make sure to give yourself space and maybe a little grace as you work through these moments. I think the term for this is pacing, but for the ND side of things. If you’re comfortable with touch in these moments, a really tight hug usually breaks the anger and takes some of the weight off, at least for me. Hope you can find some relief.
Why’d you post this without the original context?
getoffthedrugsdude@lemmy.mlto chat@hexbear.net•How do you guys keep your expectations of people (generally, not specifically) in check?English7·2 months agoI think the reality is that people are dynamic, and you’re not always going to like everything about them (and vice versa they won’t always like everything about you). For me it’s boundaries and what I call “hard no’s” (which unfortunately has been things like vaccination status and masking for me personally in recent years but that will, again, vary by the individual) that determine if I’m gonna vibe with someone or not. Boundaries are very important because they’re equal to respect. You can have friends that you only share specific hobbies with, what matters is that neither party is trying to change the other to suit their needs, and that it’s a safe space when they’re together. Ask yourself if you are the kind of person who can make space for others no matter their differences. As long as a mutual respect, kindness, and emotional maturity is present with all parties you’re gonna find it easier to be with others without categorizing them or yourself. People are not personas, they’re messy, beautiful, flawed survivors in a crazy world.
getoffthedrugsdude@lemmy.mlto News@lemmy.world•Head of New RFK Jr. Vaccine Study Practiced Unlicensed Medicine on Autistic Kids11·2 months agoThe man tapped by Health and Human Services Secretary Robert F. Kennedy Jr. to run a clinical trial looking to tie vaccines to autism has been charged with practicing medicine without a license, given autistic children a dangerous drug not approved for use in the U.S. and improperly prescribed puberty blockers.
In 2011, the Maryland Board of Physicians charged David Geier, who is not a physician and has only a bachelor’s degree, with illegally practicing medicine alongside his father, Mark Geier, a doctor who died last month. The two treated children with Lupron, a drug used to lower testosterone or estrogen levels in patients with prostate cancer, endometriosis and other diseases, along with chelation therapy, which leaches heavy metals from the body, as in lead poisoning.
Those treatments follow a widely discredited theory that blames autism on exposure to mercury in preservatives used in vaccines. Kennedy has promulgated that theory even though more than two dozen large, rigorous studies have discredited any link between vaccines and autism.
Autistic advocates decried Kennedy’s appointment, fearing his refusal to give up on efforts to establish one would refocus federal resources on finding a “cure” for what most scientists now believe is a naturally occurring human neurotype.
“Anyone who would fleece families with fake cures should not be trusted to interpret a scientific study, let alone conduct one,” the Autistic Self Advocacy Network said in a statement decrying David Geier’s hiring. “This move toward conspiracy theories and junk science puts all our lives at risk.”
A request for comment from the U.S. Department of Health and Human Services was not immediately answered. The Geiers’ Institute of Chronic Illnesses, Inc., does not have a website.
The network’s statement calls Kennedy’s selection of Geier “a clear indication that the Trump administration plans to rig the upcoming study and claim that it proves vaccines cause autism.
Autistic advocates decried Kennedy’s appointment, fearing his refusal to give up on efforts to establish one would refocus federal resources on finding a “cure” for what most scientists now believe is a naturally occurring human neurotype.
“Anyone who would fleece families with fake cures should not be trusted to interpret a scientific study, let alone conduct one,” the Autistic Self Advocacy Network said in a statement decrying David Geier’s hiring. “This move toward conspiracy theories and junk science puts all our lives at risk.”
A request for comment from the U.S. Department of Health and Human Services was not immediately answered. The Geiers’ Institute of Chronic Illnesses, Inc., does not have a website.
The network’s statement calls Kennedy’s selection of Geier “a clear indication that the Trump administration plans to rig the upcoming study and claim that it proves vaccines cause autism. This will set public health back decades at a time when vaccine hesitancy and infectious disease are both spreading at alarming rates.”
Among other claims, the Maryland board found that the Geiers diagnosed precocious puberty — a medical condition where children’s bodies mature too early — in an unusually large number of patients, did so without using the standard protocol for establishing whether the children in fact had the condition and failed to tell their families that the chelation drug prescribed was not authorized for use in the United States.
Mark Geier’s medical licenses eventually were suspended by the seven states where he and his son operated autism treatment centers under a variety of names, including the Genetic Centers of America. The Geiers conducted several studies linking vaccines to autism, only to have them retracted and withdrawn from publication by scientific journals. They have testified in hundreds of lawsuits brought by people who claim to have been injured by immunizations.
Lupron is a brand name for a GnRH analogue drug that pauses puberty without causing permanent physical changes. The drugs are sometimes prescribed for children who experience gender nonconformity or gender dysphoria at the onset of puberty.
In January, a large-scale study published in JAMA Pediatrics found the drugs were prescribed for fewer than 0.1% of youth in an insurance claims database covering more than 5 million patients ages 8 to 17. Only 926 youth with a gender-related diagnosis received puberty blockers from 2018 through 2022. No patient under the age of 12 was given the drugs.
Nonetheless, in recent years, 26 states have banned gender-affirming care for young people. The U.S. Supreme Court is expected to rule soon on challenges to the laws. In a January executive order, President Donald Trump ordered federal agencies to restrict such care.
getoffthedrugsdude@lemmy.mlto Linux@lemmy.ml•PewDiePie: I installed Linux (so should you)138·2 months agoYou know what’s not difficult? Not doing all that nazi shit in the first place for clout or for the memes. You really think he’d have apologized if his money hadn’t been on the line after backlash? I don’t get why you’re defending this trash nazi.
getoffthedrugsdude@lemmy.mlto Linux@lemmy.ml•PewDiePie: I installed Linux (so should you)132·2 months agoI gotchu fam
getoffthedrugsdude@lemmy.mlto Linux@lemmy.ml•PewDiePie: I installed Linux (so should you)176·2 months agoAre you defending him because he apologized after backlash? I don’t understand what your reply is meant for; I was just answering another poster’s question.
getoffthedrugsdude@lemmy.mlto Linux@lemmy.ml•PewDiePie: I installed Linux (so should you)23·2 months agoWhat do you mean by a reasonable place to start?
getoffthedrugsdude@lemmy.mlto Linux@lemmy.ml•PewDiePie: I installed Linux (so should you)444·2 months agoAccording to a quick search: Paying non-english people to hold up a “Death to all jews” sign, saying the hard r n-word, mocking someone about an overdose with a meme, supporting a nazi YT channel, and fans defacing a ww2 memorial in his name
Never even knew this guy existed till last year, but seems par for the course for a lotta YT personalities.
getoffthedrugsdude@lemmy.mlto chat@hexbear.net•— is easy to type and it's unfortunate that it is considered an indicator of AI generationEnglish6·2 months agoYa’ll bot from Ryan Hall’s channel has entered the chat!
getoffthedrugsdude@lemmy.mlto News@lemmy.world•Gen Z increasingly listens to peers over doctors for health advice3·2 months agoIt’s me! I technically have medical insurance but doctor’s visits cost too much to get seen when I want/need, and the insurance covers nothing…it cost me $60 for a 5 minute teledoc call for a nasal spray once. The spray was an additional $35. This was last year
Looks like a lot of user reports in the UK specifically are reporting login issues. They may not have caught on to a problem yet, I’d check back every hour or so. Also, I just quickly searched live down detector sites to get the info, so this could be purely anecdotal and isn’t confirmed by legit sources. Hopefully you’ll get access soon.