Hi everyone! That’s right, it’s time for another c/disabled megathread.
Update on the meds: they work! Quite well, actually. I feel like I’m finally functioning at a reasonable level, like I was not only getting stuff done, but I’m now able to actually effectively multitask (as much as one can lol). I’m quite happy with how it’s working, and I might not even need an SSRI at this point. If I’m getting anxiety from the meds, I’m not feeling it, because they actually reduced the amount of anxiety I have to deal with. I don’t know how (thinking ADHD-induced anxiety), but yeah, I’m a lot better than I was just last week. Quite happy for that, might actually be able to manage the end of the semester without crashing and burning this time around.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Easter once again reminding me how there’s no hate like Christian ‘love’
Hope everyone got through the weekend okayChristians are so mean. What did they do this time?
Just the usual bs you’d find in most religious folk’s homes, nothing worth repeating. It leaves me grossed out how hypocritical they are, though. Makes me want to spread love and comradery even more to counteract it, ya know?
I remember when I was a carer for the elderly there was this one devout Christian woman whose granddaughter married a trans woman. This elderly woman never stopped insulting the pair of them for it. And multiple of the old people went to church, acted all holy and then were extremely racist and homophobic the rest of the time.
Sounds about right, good grief. I’m the type to talk back to people like that, so I’m not usually the target anymore. I’ll start windmilling a mfker for talking about others in front of me. It’s the passive aggressive stuff that gets mumbled and added into conversations that got me this time. Subtle hatred is a lot more difficult to address since it’s layered.
I once had a black girl working as a carer with me and the elderly called her awful names and once she got so angry about it she threw a glass of orange juice over one old woman. The girl got fired.
It’s so unfair, the elderly just get away with it because they’re supposedly confused.That’s so fucked up. Endless OJ on that woman in hell if it exists… Honestly that job sounds pretty awful just for dealing with the people alone.
It was difficult and could be miserable… but nowhere near as miserable as being unemployed and fighting endless benefit claims.
I just talked with my friend yesterday about her religious trauma with her born-again parents and i can’t decide if i want to smash their faces or the focus-on-the-family fucker whose instructions they were following more. Smash smash smash smash
Smashing’s good. I’ll join you
As far as I’m concerned, they’re the devil-worshippers.
It’s telling how they all sound like the satanist stand-ins or ogres/goblins from every fantasy RPG ever
They don’t do themselves any favors that’s for sure. It’d be great if they weren’t actively (as a whole) making the world a worse place. And I didn’t even see the struggle session that happened when I first posted this, it’s just been my experience that self-identified ‘christians’ and religious folk are usually two-faced and mean.
I hope you got out alright
I did, ty
kinda convinced that the ai therapist is better than my actual therapist. like they both just give platitudes but at least i don’t have to explain the concept of autism to the ai
IME banging my head against a brick wall would be better than any human therapist.
one time my therapist recommended i stick my head in my freezer during a panic attack so u might be onto something
My last one told me to write daily timetables for myself and stick to them. That’s it. That was meant to be a cure for su1c1d@l depression and anxiety. And when it didn’t work she said blamed me for not trying hard enough. If a cancer treatment didn’t work would they blame the patient for not trying hard enough to be cured? Actually yes they probably would.
The one before that told me to write lists of why I shouldn’t feel depressed or anxious and look at them every time I feel depressed or anxious. That will make the bad feelings go away! Needless to say, it didn’t work. Therapy is nothing but a scam.
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So, they’re making a list of Autistic people in the US, for ‘tracking and research’.
sigh :c
good thing we werent planning on getting diagnosed? >~< /j
in all seriousness aaaaaaaaaaaa :c
I wish I could hug ya’ll and tell you it’ll be okay. The net on their so-called ‘undesirables’ is widening, but my hope is that it’ll bring us closer together, and ideally make more people care about what has already been happening. One can hope. 
A lot of my parents favorite stories about me are just me being very clearly autistic. hahahaha isn’t it so funny that you got overstimulated and had a meltdown your third Christmas?
No it just makes me sad, it makes me sad how many signs I showed and you still did nothing to help me. They’ve even told me how “lucky” they felt to have our pediatrician, because “a lot of other doctors would have diagnosed you”.
idek how this shit keeps coming up in conversation so often but I hate it. Wasn’t even the only example of my very obvious autism that got brought up over dinner.
“our pediatrician was great. sure they didnt give you access to the help you needed, but they didn’t make us feel uncomfortable, and that’s the important thing”
fucking hate people like that, sorry you have to deal with it
whenever i call myself disabled my parents r like “nooo don’t say that ur doing so much to work on urself”
and i know thats prob more supportive than most parents r but, man, wish they’d accept reality that it doesn’t matter how hard i work, im still disabled lmao
Denialism from others about your disability is the worst. It makes it seem like your struggles are not valid and sets an unrealistic expectation.
The thing I hate most is when you aren’t allowed to be upset about your illness or disability, there is so much pressure put on you to be happy. Whenever I’ve been down about my situation medical staff and other people will say things like “Stop whingeing, there are people worse off than you,” or show me news stories about ill/disabled people who are happy and grateful to be alive and say “Be more like them.” It’s selfish of them, they just want us to pretend to be happy so they don’t have to deal with our emotions.
there are people worse off than you
Thinking about the pain of others makes you fuckers feel better??
It’s probably just to guilt us into shutting up.
yea, i honestly started feeling better about myself when i realized i cant hold myself to able-bodied standards. but no, im “limiting my potential” or whatever
Yeah, I get that now that I’ve been diagnosed when trying to talk about it with my mum. She used to just go to “well you’ve gotta be more organized and we all struggle with these things” which is one of the reasons that I’ve been very hesitant to look into it, and now she keeps saying “They’ve expanded the diagnosis lately” after diagnosis.
I know that it is her trying to be helpful in the first case, and in the latter case I think it is her trying to cope with not spotting any of my issues as I was the non-problem child that was very good at hiding my feelings/dissociating (she is an educated child psychologist, but she was studying for that while I was a teen). Still kind of sucks as I feel I cannot talk to her about it since it makes her very sad to hear how much I was hiding from her, which is ironically a major reason I didn’t tell her anything in the first place.
omg basically the same on the non-problem child front
i wish i could tell her that her feelings of insecurity are her problem to deal with
One of my fellow students asked the professor about using ChatGPT for the exams. Apparently it’s going to be allowed from next semester on. I hate everything. Especially since he framed it as a good way to do accessibility.
You see the logic is that if you’re autistic or have social anxiety chatGPT can prepare your presentation for you.
but
but the hard part of that is the presentation part
i can still write out my presentation i just have a hard time presenting it
doesnt it make more sense to let people present using tts
I’m gonna be real, I think they just sprinkled a little inclusively language on shit they wanted to do.
Edit: But since you ask. They do not give any extra time for tts or accomodations if you’re in an exam where you’re not allowed electronics and if you need to sign you need to bring your own interpreter (Although they may foot the bill depending on the mood of the student support that day)
ai people seem to love doing this, but they always miss where ai is actually good for accessibility, bc those things dont make money ig
I think ai fans will just say whatever fits the current crowd.
I don’t think my autistic brain can process this weird bastardization of accessibility in the classroom.
Obviously you need chatGPT to explain it to you
My school has just placed a highly punitive zero tolerance policy on attendance. My ADHD ass is looking at getting kicked out for being about three minutes late four times this month. I am going in to talk to them about how I am pretty sure ADA reasonable accommodations include letting me be <5 minutes late a few times without getting kicked out. This is gonna suck. Since I don’t think the people who would invent this policy are people who are reasonable to work with.
Are you in high school or college? There’s definitely an office to talk to in college.
Community college level kinda. It is city trade school program. So it is government and the assumption would be it is college level as any other program of this type would be at a community college.
Attendance taking post-high school is such fuckery. It’s your money you’re wasting if you don’t go to class. And it’s indicative of a shitty teacher if people don’t show up and still pass. Being late? Who gives a shit?
(You shouldn’t skip class but things happen during university).
The policy is if you are late you are sent home. If you miss enough class you are kicked out if the unit. This is upsetting to me as I am not very late. I am changing adhd meds right now so I am having a rather severe difficulty in being perfectly one time. I am getting am A in the class.
That sounds unreasonable to me. None of my classes at four-year university ever did that. Even the ones that mandated attendance wouldn’t kick you out for being late even if there was some kind of other penalty.
Yeah, it is extremely unreasonable. In the way of cowardice I am close enough to the end of the program I don’t want to make waves. When I talked to the boss about getting reasonable accommodations she said she is stressing because >50% of the class isn’t making their arbitrary standard. I told her that means that is a policy that doesn’t work for our student population and she said something incomprehensible about it being clearly set out in the student handbook. I can’t tell of she just lacks cognitive flexibility or she is not equipped to handle the responsibility of her station. It is just weird vibes.
I imagine the policy actually provides perverse incentives to not attend. Oh, there was a traffic delay so I’m going to be 5 minutes late? Welp, guess I’m skipping class today. Since I can’t possibly make it on time, why even try to show up?
I have no idea who you’d need to talk to since it sounds like a smaller program. But generally post high school level you can get more accommodations but you need to reach out and keep contacting people.
I have a meeting with the program director about the invoking ADA right to get scheduling flexibility. I am just not optimistic about how it will go.
The important thing is to not take no for an answer. Keep pushing. You don’t need to be confrontational, but persistence works.
<3
I don’t know if anyone remembers me talking about my awful therapist a few months ago. Thankfully those sessions finally ended, I only stuck it out to help with my benefit appeal. Well yesterday I got an email from some random person at the mental health service, asking how things are going and wondering whether they should offer me another treatment. This was my response:
I am not sure what the point is. Your service doesn’t ever give me a treatment. Your therapists just do time-wasting nonsense so they can collect a paycheque. Last time I asked if I could have something that might actually make a difference, like EDMR and was told no, it wouldn’t be suitable for me because it might bring bad feelings up. So instead the therapist spent each session doing a meditation and telling me to write timetables for myself. What is this supposed to achieve? It’s nonsense, this is not medical treatment. Not only is it unhelpful, it makes things worse because I have the stress and commitment of turning up to these sessions each week, while being given absolutely no benefit at all. The therapist before that around 2019, the entire treatment consisted of being told to write lists of reasons I shouldn’t feel bad, and then look at those lists when I feel depressed or anxious and this will magically cure me. I’m tired of having my time wasted by therapists who don’t care and just want their paycheque. If you are unable or unwilling to give me a serious therapy then just don’t bother me any more.
I guess I’ll wait and see what their response is. Part of me is thinking maybe I shouldn’t have said this, if this person tells my shitty therapist what I said maybe the therapist will be angry and try to ruin my benefit appeal somehow. She already threatened that if they asked she would tell them I hadn’t been to all the sessions.
And the weird menthol-tingling feeling is back. It probably got missed as it was in a response to a message further down but basically I had a terrible migraine that started off as a menthol-tingling feeling in my crotch, then spread down my right leg, into my right arm and into the right side of my face. After 5 hours in casualty(thinking it could be a stroke or trapped nerve) and a GP appointment it was finally diagnosed as a hemiplegic migraine and a migraine med got rid of it. Now the tingling menthol feeling is back in my crotch.
Also having trouble changing my own foot bandages, I’ll have to see if I can get an appointment with the nurse to do it.
9·8 months agoI do remember the awful therapist
Last time I asked if I could have something that might actually make a difference, like EDMR and was told no, it wouldn’t be suitable for me because it might bring bad feelings up.
That’s the point… No? To give you the space, time and help to work through things, which will bring up bad feelings.
One pattern some specialists see in long covid and ME/CFS is that it’s often seen in people who tend to overwork themselves and ignore signals of their body telling them to rest. But I wonder if there are actually that many people who don’t do this? Because or whole culture and economical system is built to get people to work as much as possible.
the only people i know not conditioned to overwork themselves are those who had a pretty cushy upbringing and then got a high paying job easily
like mostly people who i met in uni that barely kept up with their classes but still got a job easier than me aaaa
I feel a bit like a fraud/imposter posting here despite having Schizophrenia (since im kinda highly functional most of the time). The meds really do work for me as long as the dosage is correct. Lifes good for me atm. There are challenges for sure but compared to many im doing pretty dang good.
Glad to hear things are going well for you
Kid just threw his sippy cup at the tv and broke it and now I’m having a really hard time regulating because it was really fucking expensive and we can’t afford a new one because I need to get my teeth fixed and get my car fixed and get my car fixed again. I’m having a really fucking hard time about it.
Aw that sucks…you wanna scream into the void with me?
I couldn’t think of a response but this works too lol.
Ha, sorry, I can see how that didn’t make sense in hindsight. My thought process was emotional dysregulation>no outlet>scream it out might help
I figured it caused a bunch of emotions with no place to put them, so my knee-jerk reaction was to try and give you a space to get them out. Hope you’re doin better today comrade.
Can you get a shite 720p stopgap used?
I’ve been shopping around. The thing is that I have a soundbar and sub that is specific to this brand and, to the best of my knowledge only works with Roku. So I’m trying to find a TCL Roku specific TV. They have some on FB marketplace for $150-200 but Walmart is selling basically the same model for $360 right now.
Hy partner’s bougie ass parents that were able to retire like to throw their money around sometimes and said they might get us one for our upcoming anniversary. If that is the route we go, I’m gonna try to milk them for a nicer one.
I don’t suppose the tv just went dark did it? is the lcd panel itself cracked and bleeding or is it just flickering or dark?
It’s bleeding. The right side is almost all black with the red, green, and blue lines, then vertically where he hit it, it’s got another thinner black bar and bottom half has lines going across. It’s fucked for sure.
Boo, id hoped to share my victory experience replacing my borked backlights on my tcl tv. Sorry friend
(CW: Vent, discussion of fascist topics and ableism)
It’s fucking disgusting seeing how ubiquitous trolls and assholes are, and all for no reason too. Look at 4chan and Twitter, there’s no fucking reason for them to be so cruel. They’re just mean because they can be.
And what blows my mind of all of this is with all the knowledge in psychology, I’M the one who supposedly has something wrong with him on a mental level. Like how am I “broken” and not anyone like Nick Fuentes or Asmongold who are almost proud of how mean they are? They are doing wrong, they know it’s wrong, and they’re doing it anyways for no logical reason.
But sure, I’m the problem and every last thing I do is “wrong”.
Well we don’t need to look at 4chan anymore
just over a month till summer damn time sure flies when you’re dissociating
Mood tbh, also I love your username
great minds
Tired of “living” like this for all these years. My body and brain just gets worse everyday.
Got prescribed ADHD meds (will get delivered tomorrow), gonna receive help finally getting my prescribed CPAP (I kinda forgot about it) on Wednesday, and uh consulting about a surgery (not bottom surgery, bariatric), honestly I guess I’m moving forward kinda/cautiously optimistic
Yay!!!
Awesome news!
